A trial in the US found that applying stem cells from the mother’s placenta to her baby’s spine while it was being repaired was safe and improved the child’s mobility and quality of life.
The couple are now fundraising for advanced prosthetics, including potentially robotic hands, which they said could cost tens of thousands of pounds.
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O'Farrell said his weight loss with the drug was "almost instant" and that, as well as losing more than five stone (34kg) so far, he has more energy and has been able to exercise for the first time in years.